I’ve mentioned before that there are multiple chronic Invisible Illnesses in this household. Indeed, there are just in me. Recently I’ve had the mixed blessing (people who understand what I go through; people who understand because they go through it too) of coming across some great bloggers with Chronic Invisible Illnesses. Many of them will agree with me when I say that I don’t have a clue how people who don’t have Jesus Christ in their lives get through their days. he knew pain that none of us will ever have to know because he did it for us; for me. We have a God who suffered, who was tempted in every way every day so He knows what we go through. He has the ability to remove the thorn from our collective sides (if you’re unfamiliar with the story, the disciple of Jesus named Paul spoke often of the thorn in his side. He prayed for Jesus to remove it and he certainly was able. After all, He’d healed so many yet in His infinite wisdom He chose not to heal one of the greatest contributors to the writing of the New Testament).
There is so much controversy about why. Doubters and believers both will often, at one time or another, say or think at least, if He’s such a strong, powerful, wise, kind God, why do I still have___________ (fill in the blank(s). I’ve thought and prayed that. But I choose to still believe in Him just as I believe in air though I can’t see either.
I’ve been plagued by chronic invisible illnesses nearly, if not all of my life. Mom says I was a sickly infant and toddler and by age 5 diagnosed with and put on medication for, asthma. I’ve been on medications ever since. My most recent hospitalization last spring added 4 intra-venous meds while I was inpatient and I came home on a much higher than maintenance dose, yes I take prednisone every day of my life and always will, and at least 3 new prescriptions.
And unless you catch me in an uncontrolled attack, which still happen despite 7(?) or so meds I take daily,(I can’t/won’t keep it all in my head, it’s on paper) I look fine. People glare at me when I park my handicap, w/c ramped van in a handicapped parking space because I don’t have the usual hang tag I have handicapped license plates; they mean lifetime. And asthma is one of several conditions which are all chronic and all invisible until uncontrollable, unmask-able symptoms arise. Oh, yes, we with these conditions (I prefer that word to diseases, though they are diseases, just sounds less harsh to me) masquerade a lot.
Another invisible illness I share with many, many identified people (now) is fibromyalgia. Most people know someone who has it. I’ve found fellow bloggers who have it, and we all do what we can, when we can.
I just love this e-card “Fighting Fibromyalgia” posted. It’s how we “FM’s” feel often. Though when I was finally diagnosed about 20 years ago after going round and round with severe pain for years, just to add injury to illness (yes that was deliberate) so, so many, including MD’s didn’t believe it was a legitimate diagnosis! I was working as a unit secretary, 20 hrs./week, handling all patient charts, and in such agony when I handed in my resignation the head of nursing said something to the effect that I was grey from pain and she wondered if she was going to have to make me leave. But she only took the resignation when I, at her demand, changed it to a status change to per diem hours. And she hired me again for full time, creating the same job, but in a new, sub-acute setting that has a lot more activity than the long term care most think of when they hear nursing home, rightly so.
Well, enough for day one of the week. If anyone wants to do a guest post with their own story, please email me. And, of course, I love comments. 🙂