“What’s It Like Living With A Chronic Illness?”

I recently found the blog “Lachlan and Cathy” Lachlan has fibromyalgia, as do so many of us. With his permission I reblog this today.

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Liebster Award for Living the Spoonie Life

 craftythriftydecoratingwifemom  improving life, little by little on a budget

May 26 

Liebster Award

Posted by craftythriftydecoratingwifemom.wordpress.com posted in Categpries blogging, recognition, Tagged: blogger, WordPress, nomination, blog, followers, German language, Liebster Award, readers.

Since my first nomination for the Liebster Award, one blog disappeared.  It was there in the morning, gone in the evening.  Verrry Mysterious. But I found a great blog about a cause near (can’t say dear) to my heart, taking an interesting approach to a growing problem.  This is livingthespoonielife.wordpress.com.  Karen writes about fibromyalgia.  I know there are a several blogs about fibromyalgia I nominated because so many people, men and women, live with a condition once thought to be hysterical in cause and nature.  So I am happy to give these new bloggers some recognition they may not otherwise receive.  Ok, Karen, here’s the deal.

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The Liebster Award is given to up and coming bloggers who have <200 readers/followers. “Liebster” in German means: dearest, sweetest, kindest, beloved….all the nice words you can think of :-).

As I wrote to Pat (who nominated me) directly, I’m honored to be considered in this way.  I think this just might spur me on to post more often.  That is assuming, of course, that I get my act together and on schedule, hehe.

I have read of bloggers getting awards and I got a Sunshine Award long ago.  But posting as infrequently as I have for quite a while, I never expected to get another.  So imagine my shock when newbloggycat.wordpress.com nominated me for the Liebster Award!  Thank you, Pat.  I thoroughly enjoy your joke of the day and quote of the day.  I guess I would have kicked the first two job applicants out the door, too.  See, I wear glasses.  You’ll have to go to Pat’s blog to find out what I’m talking about :P.

Here are the rules that go with this award:

1. Thank the blog that has given you this award.

2. State 11 random things about yourself.

3. Answer the questions the tagger set for you.

4. Choose 11 people and link them in your post.

5. Choose 11 questions for the people you tagged to answer.

6. Go to their page and tell them.

Now, 11 random facts about myself:

1. I love the Lord.

2. On May 29 this year I will have been married to the same great guy for 37 years.

3. We were married 8 years before I conceived the first of 2 times.

4. Our daughter is 29, living elsewhere and engaged.

5. Our son is 27, has autism and lives with us.

6. We have 3 standard poodles about 50 lbs. each who think they’re lapdogs/people.

7. We have had poodles since our son was 3 to help him learn to relate to others and fell in love with the breed.

8. I’m allergic to all things with fur, but poodles have hair.  Good thing, they’re great friends.

9. I love thrifting!

10. I also enjoy crafting once I get started.  That’s the hard part.

11. I can easily be a chocoholic but we don’t keep it in the house.  DIET

Here is my list of nominees:

1. letterstolila.wordpress.com (http://letterstolila.wordpress.com)

2. oakhouse5.blogspot.com (http://oakhouse5.blogspot.com)

3. maryellecreative.blogspot.com (http://maryellecreative.blogspot.com)

4. thispathlesstraveled.wordpress.com (http://thispathlesstraveled.wordpress.com)

5. justbreatheslowdeepbreaths.wordpress.com (http:justbreatheslowdeepbreaths.wordpress.com)

6. loftyloves.wordpress.com (http://loftyloves.wordpress.com)

7. ohwhatapain.wordpress.com (http://ohwhatapain.wordpress.com)

8.  fightingfibromyalgia.wordpress.com (http://fightingfibromyalgia.wordpress.com)

9.  bulletbythefeather.wordpress.com (http://bulletbythefeather.wordpress.com)

10. turnungthehourglass.wordpress.com (http://turningthehourglass.wordpress.com)

11. livingaspoonielife.wordpress.com (http://livingaspoonielife.wordpress.com)

Here are the answers to the 11 questions asked me:

1. Who is the most important person in your life?  Easy–my husband.

2. Three must-haves on a desert island.  Drinking water, hubs and, sadly, my meds.

3. Who is your favorite actor/actress?  Sandra Bullock

4. What is your most 0ver-used phrase?  “Ya think?”

5. Did you have an imaginary friend?  No.

6. If your life has a theme song, what would it be?  “Jesus Hold Me Now”  Casting Crowns

7. What’s your favorite sport?  When I was younger and healthier I played tennis………

8 .If you could be anyone for one day, who would it be and why?  The richest American, pay needs (medical, therapy, housing, transportation) of military vets.

9.What is your most embarrassing moment?  Maybe the first time this nomination post went through so wonky.

10. Please complete this sentence “My dogs…makes me laugh.”

11.  Coffee or tea?  coffee

Now my questions for you:

1, Before you started blogging did you know anyone who blogged?

2. What have you done as a paid job?

3. What have you done as a volunteer job?

3. If you haven’t had a chance to work at it, what’s your dream career?

5. Are you single, married, in a committed relationship?

6. Do you have a child(ren)?

7. Coke or Pepsi?

8. How did you spend school vacations?

9. What is your favorite animal?

10. Beach or mountains?

11. Favorite season?

Happy and successful (whatever that means to you) blogging

Janet

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Liebster Award Post

 

As I look at the draft I approved to publish and the blog post that came up when I looked, the post published had nothing in straight lines; 1,2,3,etc. are wonky.  In the approved version all was neatly aligned.  If you got the aligned post, great.  If not, I apologize–my draft never looked like that!!

Janet

 

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Very Surprised

 craftythriftydecoratingwifemom  improving life, little by little on a budget

May 23

Liebster Award

Posted by craftythriftydecoratingwifemom.wordpress.com posted in Categproes blogging, recognition, Tagged: blogger, WordPress, nomination, blog, followers, German language, Liebster Award, readers.

Image

The Liebster Award is given to up and coming bloggers who have <200 readers/followers. “Liebster” in German means: dearest, sweetest, kindest, beloved….all the nice words you can think of :-).

As I wrote to Pat directly, I’m honored to be considered for my blog, and myself, in this way.  I think this just might spur me on to post more often.  That is assuming, of course, that I get my act together and on schedule, hehe.

I have read of bloggers getting awards and I got a Sunshine Award long ago.  But posting as infrequently as I have for quite a while, I never expected to get another.  So imagine my shock when newbloggycat.wordpress.com nominated me for the Liebster Award!  Thank you, Pat.  I thoroughly enjoy your joke of the day and quote of the day.  I guess I would have kicked the first two job applicants out the door, too.  See, I wear glasses.  You’ll have to go to Pat’s blog to find out what I’m talking about :P.

Here are the rules that go with this award:                                                                                     1. Thank the blog that has given you the award.                                                                             2. State 11 random things about yourself.                                                                                       3. Answer the questions the tagger set for you.                                                                                         4. Choose 11 people and link them in your post.                                                                             5. Create 11 questions for the people you’ve tagged to answer.                                                            6. Go to their page and tell them.

11 random facts about myself:                                                                                                           1.  I love the Lord!!                                                                                                                                           2. On May 29 this year I will have been married to the same great guy for 37 years.             3. We were married 8 years before I conceived the first of 2 times.                                           4. Our daughter is 29, living elsewhere and engaged.                                                                                   5. Our son is 27, has autism and lives with us.                                                                                             6. We have 3 standard poodles, about 50 lbs. each, who think they’re lapdogs/people.                       7  We have had poodles since our son was 3 to help him learn to relate to others then fell in love with the breed.                                                                                                                                                                                                                                                                                                                                                 8. I’m allergic to all things with fur; poodles have hair so it’s a good thing, they’re great friends.                                                                                                                                                                                      9. I love thrifting!!                                                                                                                              10. I also enjoy crafting…once I get started–that’s the hard part.                                                              11. I can easily be a chocoholic, but we don’t have it in the house for the most part.  DIET                                

Here is my list of nominees:

1. letterstolila.wordpress.com (http://letterstolila.wordpress.com)                                           2. Oakhouse5.blogspot.com  (http://Oakhouse5.blogspot.com                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                       3. maryellecreative.blogspot.com (http://maryellecreative.blogspot.com)                                                                                                                                                                     4. kaylaandashley.blogspot.com (http://laylaandashley.blogspot.com)                                                                                                                                                                                      5. thispathlesstravelled.wordpress.com (http://thispathlesstravelled.wordpress.com)           6. justbreatheslowdeepbreaths.wordpress.com (http:justbreatheslowdeepbreaths.wordpress.com)                                                                                     7. loftyloves.wordpress.com (http://loftyloves.wordpress.com)                                                                   8. ohwhatapain.wordpress.com (http://ohwhatapaininthe…wordpress.com)                                                9. fightingfibromyalgia.wordpress.com (http://fightingfibromyalgia.wordpress.com)             10. bulletbythefeather.wordpress.com (http://bulletbythefeather.wordpress.com                                  11. turningthehourglass.wordpress.com (http://turningthehourglass.com)

Here are the answers to the 11 questions asked me:

1. Who is the most important person in your life?  Easy–my husband.                                     2. Three must-haves on a desert island.  Drinking water, hubs and, sadly, my meds.             3. Who is your favorite actor/actress?  Sandra Bullock                                                                 4, What’s your most over-used phrase?  “Ya think?”                                                                                5. Did you have an imaginary friend?  No                                                                                                      6. If your life has a theme song, what would it be?  “Jesus Hold Me Now”  Casting Crowns   7. What’s your favorite sport?  When I was younger and healthier I played tennis………         8. If you could be anyone for one day, who would it be and why?  The richest American, pay needs (medical, therapy, housing, transportation) of military vets.                                     9. What is your most embarrassing moment?                                                                                              10. Please complete this sentence “My dogs…makes me laugh.”                                                 11. Coffee or tea?  coffee

My questions to you:

1. Before you started blogging, did you know anyone who blogged?                                           2. What have you done as a paid job?                                                                                               3. What have you done as a volunteer job?                                                                                     4. If you haven’t had a chance to work it, what is your dream career?                                       5. Are you single, married,  in a committed relationship?                                                             6. Do you have child(ren)?                                                                                                                 7. Coke or Pepsi?                                                                                                                                                 8. How did you spend school vacations?                                                                                           9, What is your favorite animal?                                                                                                       10. Beach or mountains?                                                                                                                                 11. Favorite season?

Happy and successful (whatever that means to you) blogging!!

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Autism Awareness Wreath…finally

GE DIGITAL CAMERAGE DIGITAL CAMERA

 

Here is the beginning–a foam circle wreath from from Dollar Tree,  wrapped in green felt I had.  Craft paint I had.  Empty cereal box on which to make a mess I had.  Foam brushes were .05 on sale at Michaels.  More about puzzle pieces to come.

 

 

The cute animal scene puzzle (also from Dollar Tree) was 24 pieces; sizes that I thought would serve me well.  And they did.

The pansies I had from last spring.  The little it’s missing doesn’t matter.  It didn’t even whimper when I cut pieces off.  

Have you ever worked with paint crayon?  Interesting medium.  It stays tacky sticky forever.  The light blue letters in “til” are punch-outs from the stencils just held on by that paint crayon.  The rest were really stenciled with my .05 brushes and paint.

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Ta-da!!  The much overdue completed project, hanging from a bit of blue ribbon on the wall.  Now you see why it was so long, huh?  So complicated–NOT!!  If you can’t read all the words, it says “till all the pieces fit”.

So, what do you think?  It’s different from the others I’ve seen, hopefully portrays the message.  If anyone want to have one of their very own, I think it cost me $3.00.  I must keep the cost of materials, and shipping if there is any (I’ll use the least expensive).  If you wish to pay more, it will go to The Autism Society of your state (or choice) and to a small group I belong to, Parents of Adult Children on Autism Spectrum (PACAS) locally.  We who have adults really have very little in terms of support.

Thoughts?  Anything to add?  Want one–my e-mail is at the top.  I have since gotten some pool noodles (guess where?) so I could change it up so it’s at least bigger.  Your wish (within reason and my ability) is my command.

Love,

Janet

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Humor and Chronic Pain-A top 10 List

http://ohwhatapain.wordpress.com/2013/05/13/humor-and-chronic-pain-2/

This was not originally written by me, but by a very experienced LCSW who also suffers very real and often excruciating pain.  Since I’m in constant pain the last few days, I had to repost  Thank you Tracy for your honesty and your skills that you generously share.

Janet

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Happy Mother’s Day!!

Mother’s Day Sign from Boutique Cafemothers-day-2011-11x14

To all the mothers, grandmothers, great-grandmothers and mothers-to-be, Enjoy your special day.

Love,

Janet

 

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World Asthma Day

Asthma in America

Asthma in America (Photo credit: GDS Infographics)

Did you know that today is World Asthma Awareness Day?  Neither did I.  Totally slipped under the radar.  I looked on NIH and CDC websites, saw nothing about it.  On one of the local news channels they talked about it.  Something wrong with this picture?  I think so.  One in twelve kids in America has asthma.  I was one, now I’m an adult with severe asthma.  My kids both have it from childhood, though my son’s seems to be gone.  My brilliant asthmatic daughter smokes!!  Could wring her neck.  Anyway, it’s an epidemic.  Higher incidents among the poor, cockroach leavings are a huge trigger.

Asthma

Asthma (Photo credit: liliazdad)

Exercise induced asthma is common, I have that.  Cold induced asthma is common, I have that, too.  I never knew till 2 years ago that drinking a beverage with ice in it (which hospitals give patients all the time) could trigger or worsen an asthma attack.  It makes sense; the trachea and esophagus are so close.  And of course we all know of allergy induced asthma.  That’s what my daughter had and I have.  They finally gave up on telling me I’d out-grow it when I was 40, I think.  DUH   I found a recognition item!

Then we have the myriad of treatments.  A good thing.  When I was young and having frequent asthma attacks, prednisone (cortico steroid) was treatment of choice for persistent asthma.  When you’re allergic to cigarette smoke and live with a smoker, that happens.  So I’ve been on some dosage since I was twelve.  Now remember, I’m vintage so that’s a lot of prednisone.  That has it’s own collection of serious side effects, but it was what they had, and all of this was unknown.  Now, thank God, there are safer options.

asthma treatment

asthma treatment (Photo credit: pilsna)

Such a cheery post, huh?  Well, now you know why I don’t have a lot of posts, though I wish I did, about tag sales (which I love), thrifting, even shopping for materials to make projects because that means leaving my sealed tight house (energy efficiency–climate control is a bonus) to get supplies.  Though I did finally finish something that I’ll post when I get pics into the computer.  I also have CRS, :-).

Anyone with experiences, comments?  I’d love to hear from you.

Love,

Janet

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Autism Awareness Month

From Hoybycrafts.blogspot.com by Shannon Eyer 

First I want to say there should not need to be one month of the 12 for awareness of autism, breast cancer, or any of the dozens of others, it should be awareness all year.  Off my soapbox now.

Shannon is an  Autism Support teacher, and a very dedicated one if what she writes is any indication.  To Shannon and all like her I say a very sincere thanks. I include para-professionals in the field–they keep the student-instructor ration way, way down, much smaller class sizes than in any public school setting.  Without your amazing help and cooperation with us as a family; including us as a part of his team, he wouldn’t be where he is today and neither would we.  We learned almost as much under your guidance as our son did.

 He is now a young man, not a secret to any who follow my blog.  (To those that do– Thank you)  Needless to say, he has benefited greatly over his eighteen years in the education system by teachers who are dedicated to helping people like himself be all they can be; all they were meant to be.  We went outside the box of conventional wisdom in the 80s and 90s and had him placed out of district into schools that specialized in helping children like ours that didn’t learn conventionally.  We were demeaned for that choice almost as much as he was when we tried placing him for kindergarten and 1st grade in town.  The teacher in 1st grade couldn’t handle the other kids’ reaction to him, though she honestly tried to teach him.  So back to out of district he went.  The schools we experienced were wonderful at their goal of helping these students where they were at, regardless of their chronological age.  Parents were welcome there and were included by way of “shuttle notebook” what was happening there, we returned the notebook with info on what was happening here.  These kids are very impacted by what happens outside the classroom; at home or on the bus.

His toilet-training was done as a joint effort of the school staff and us, his family.  We communicated our charts of how often he was toileted, success and failure ratio, and once the diapers were off, they never went on again., at home or at school.  Not even pull-ups.  Not taking any change of circumstance well is a trait common among those with autism, and this boy was no exception.  Many superhero underwear and extra clothes were bought and washed during that time.  Many, many.  On vacation I was resentful of spending part of every day at the laundromat.  And we’re talking three day vacations.  That is all he could tolerate away from his routine.  He went to summer school, they made it fun by having day camp type activities built into the day, but so were academics.  An entire summer off from school, these students regressed a lot.

I had the privilege of working as a substitute para-professional in one school (where our son ended up spending twelve of his eighteen years of school).  I was bitten by a student because of her disability, whatever it was.   Another student who had Tourette’s Syndrome  (I had to be warned of behaviors) spit on me, kicked me, used unacceptable language.  All was accepted, though verbally corrected, because of his diagnosis and its severity.  He also has cerebral palsy to the severity he was in a wheelchair and at 21 still could not walk, stand, talk clearly or much of what you would expect of a “normal” 21 year old.  Yet he, like all of the students, were accepted there. Through that school our son learned to be non-judgmental of others, he was our guy’s friend.  Because this young man graduated before our son, he came back to the school to see our guy, his friend, graduate.

Our son has held competitive employment, working 40 hours a week.  That never would have happened if he had stayed in public school here.  He is currently unemployed, as many are, seeking employment, doing jobs at home.  We’re glad he does, especially considering we both have disease in our lumbar areas that make doing many of the things he does impossible for us.  He was scraping popcorn paint off the ceiling yesterday.  That amount of time standing would not be possible for either of us, his parents.

If anyone has anything to say or ask,  please do.  This blog is set up as a no-reply because I cannot change it at this point in time, but my email is at the top right of the page.  Thanks for showing your interest by reading this.

Janet

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Thrifting Finds

Hubs found this listing on eBay the other day.  Nice, huh?  The center drawer is a flour bin.  It is a farmer’s baking table so I guess that’s logical.  Look at the price.  $695 plus shipping.  That would not be cheap.  It’s the table alone.
BAKER’S FARM TABLE WITH ENAMEL TOP
C

    • US $695.00

The table and chairs below we got from our favorite Used Furniture Store right here in Windsor Locks, about a mile from our house.

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2 drawers, one a silverware drawer

Sorry about the very, very poor picture quality and the fact that the legs of the table are chopped off, lol.  It looked much better before it finally made it to the post.  Anyone else have a problem with getting iPhone pictures into a photo folder that allows them to be put directly into a blog?  I finally e-mailed this to myself and copied and pasted after almost 3 hours.  Special kind of technically challenged am I.

Anyway, guess what this one, that really does look better in real life, cost?  $100 !!!

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We got these, too!! See the table does have legs.

Care to guess what this pair of turquoise retro chairs cost in this wonderful store?  $60!!  Can you believe it?  The store is owned by a husband and wife.  We asked if they came across another pair to grab them for us and she said it’s highly unlikely to find another pair that color.  Who cares???  Same vintage and style would be fabulous.  Hubs went in the basement and came up with a wood chair with spindles in the back, just a shade lighter than these.  Neither of us  could believe our good fortune that day.  And to top it off, they bought the table & chairs that had been in the place our new old one is, and some other stuff from the basement.  He and a helper did the exchange and saw other things he wanted to tell the wife about, but he definitely wanted a few things.  We didn’t see him when we were there recently, but surely we will.

Another time I’ll show you some other things from this store.  And I’ll take the pictures with our real camera that loads into a program that works.  Another thing to add to my list of things to fix for the PC guy……I have Photo Streamed and used pics before but not tonight.

Hope everyone had a wonderful Easter!

Janet

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